Blogging. A word I never used until yesterday. But a good friend suggested I try it. Use your power for good I thought. Ok I can do that. Here's the thing. I am no writer. Hell, I don't even like to read. But I'm gonna give it the old college try. Well, on second thought, I'd better try harder than that.
Let's begin with the facts. What exactly has brought Lee and I to this chapter in our lives...
~ Lee was diagnosed with Pulmonary Fibrosis in March 2008 at Duke Hospital.
~ Pulmonary Fibrosis is a terminal disease with lung transplantation as the only treatment.
~ Lee undergoes a week long lung transplant evaluation at Duke in March 2009. Was denied due to Esophageal Dismotility.
~ In March 2011, traveled to The Cleveland Clinic for a second evaluation. Sadly, was denied again. Considered "high risk" because of the esophagus issue.
So here we are. The last week in July 2011. About to embark on our final attempt at a lung transplant evaluation. This time at The University of Pittsburgh Medical Center. We have been told that Pittsburgh is our last resort.
We drive to Pittsburgh this coming Sunday. My goal is to provide daily updates on this blog. And I'll include photos and videos if possible. Please feel free to ask questions or post
comments.
Blogging can be very cathartic. It's a great place to vent your frustrations, celebrate your victories and find support when you feel alone. Prayers for you & Lee as you embark on this next chapter of your lives.
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